accessibility · disability · fitness

Immigration museum and the fitness test: Sam wonders about failing

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So I was the fittest I’ve ever been in my life at 50 but I am still wondering about the various meanings of “fitness.” I’ve been thinking about it lots in light of arthritic knee, recent limits on my mobility, and my knee brace. (See snazzy knee brace photo above.) Am I really fit if I can’t run? What if I can’t walk very far at all? My body performs pretty well, given its limits, but sometimes I am not so sure how to think about those limits.

What prompted it most recently was a trip to Germany to visit the University of Bremen, a university with which Guelph has an exchange program. I blogged about biking in Bremen here.

But it wasn’t all bike riding and meetings and dinners. We also had one day for group tourism and so took the train to Bremerhaven with an exchange student from Guelph to visit the German Emigration Center, a museum dedicated to the history of German emigration, especially to the United States. It is Europe’s largest theme museum about emigration.  Here is a NYT piece on Bremerhaven.

In the museum, visitors can experience the emigration process through interactive exhibits.  We walked through the docks and visited a ship and could see all the various classes of rooms. We then exited in New York. In New York immigrants were examined on Ellis Island. Part of the test included climbing a steep flight of steps. Potential immigrants were observed and given a score for “fitness.” I thought about that while visiting the museum and climbing the steps because my knee was particularly sore that day. I could barely put weight on it and stairs were a real challenge. There was an elevator but you had to leave the interactive tour to go find it. Instead, I took the steps slowly, one at a time, and thought about almost certainly failing the immigration fitness test. I’d be seen as a burden.

Of course, it’s not just history the link between disability and immigration. It was only this year that the Canadian government ended barriers to immigration for disabled immigrants.

From the article linked above: “After four decades, the federal government is getting rid of rules that turned away would-be immigrants with intellectual or physical disabilities, Immigration Minister Ahmed Hussen said Monday.The government will no longer be allowed to reject permanent resident applications from those with serious health conditions or disabilities. Most of those impacted by the policy have been economic immigrants already working and creating jobs in Canada, but whose children or spouses may have a disability, Hussen said.”The current provisions on medical inadmissibility are over 40 years old and are clearly not in line with Canadian values or our government’s vision of inclusion.”

And lots of countries still have limits on immigration that rule out people with disabilities. It’s unlikely they use the “observe the person walking upstairs” test but it doesn’t matter. It’s still unjust.

 

Image result for immigration museum bremerhaven

accessibility · aging · cycling · disability · fitness

Bikes as mobility aids: Another reason to prioritize cycling infrastructure

I came across this article the other day on “rolling walking sticks.” It’s about the number of disabled people in Cambridge who get around on a bike.

From the article: “Riding a bike may be easier than walking for two-thirds of disabled cyclists, but they often remain invisible to society. Many don’t realize that more than a quarter of disabled commutes in this university city are made by bike.”

Lately I’ve become one of those people for whom riding is much easier than walking. I ride my bike sometimes when walking isn’t an option. I often find myself wishing I had my bike with me. Lately I’ve even been shopping for a foldable, take anywhere bike. It would be nice to have a bike to ride between meetings, that I could easily take into the meeting when I got there.

In Australia, at ANU, the philosophy department had a bike for riding across campus. It had wide tires and a big basket on the front. Since all university departments had them there was never a need to lock it. Maybe Guelph could go that route?

My first experience riding with someone with a disability was very striking. While in Canberra, Australia I rode bikes with Michael Milton, a world record holding cyclist with one leg. Milton’s a serious athlete. He also holds the world speed record for downhill skiing. We were both members of the Vikings cycling club.

Here’s his impressive Wikipedia bio: “Michael John Milton, OAM is an Australian Paralympic skier, Paralympic cyclist and paratriathlete with one leg. With 6 gold, 3 silver and 2 bronze medals he is the most successful Australian Paralympic athlete in the Winter Games. ”

He’s also a really nice person to ride with.

One of the interesting things about Milton is that he doesn’t have a prosthetic leg for riding so when you’re riding bikes and you stop for coffee, he still gets around by bike. The bike comes wherever he goes because in addition to a go fast cycling machine, it’s also his main mobility aid. It goes in schools and shopping malls.

On a bike trip a few years ago, I noticed that the two oldest riders in our trip had a very hard time walking. They limped. They couldn’t do stairs. Off their bikes they barely looked mobile. But on their bikes, whoosh!

We jokingly called them Statler and Waldorf. They arrived each night for dinner in PJs. One was a widower and the other’s wife wasn’t well enough to holiday anymore. So the two joined forces and took biking holidays together. They had great stories of trips they’d done together through the years.

We were riding 70-100 km a day, including some serious hills, and they had no problem. I started to wonder how many seniors with walking issues might do well to switch to two wheeled transportation.

Again from the article on bikes in Cambridge: “For two out of three disabled cyclists, riding a bike is easier than walking, easing joint strain, aiding balance and relieving breathing difficulties. According to recent research by Transport for London, 78% of disabled people are able to cycle, while 15% sometimes use a bike to get around.”

It seems to me it’s another reason to put priority on bike infrastructure. If there are people, like me, riding because walking isn’t an option, then we need to make riding safe and accessible for all.

See Elly Blue on bike riding, disability, and infrastructure.

In my own case, it’s part of an evolving love story between me and bicycles. It’s been about transportation, about fitness, about friendship, and about performance. What’s new is thinking about bikes as mobility aid that help me get around when walking just won’t work.

body image · disability · fitness

Thinking About The Opportunity to Become Living Art: Other Sam Gets Body Painted (Guest Post)

by Sam Walsh

As someone who studies Sociology and has a visible disability (I use a wheelchair), I have always been interested in the relationship between culture and the individual (the body). I would suggest that my body falls outside the expected norm. I am often aware of strangers staring at me. I know people watch me get in and out of the car. I have had people come up to me at times and comment on things I am doing, things that I feel other people would go unnoticed for. I am also continually asked if I need help when out in public. I often wonder about how this frames my position and my body in society. As a bit of a hobby, I find ways to subvert or disrupt how my body is read or how people interact with me. I wear a lot of interesting shoes, because I feel it draws attention to a part of my body that makes people uncomfortable. Often when people ask if I need help, they will assume I want a push. My wheelchair doesn’t have push handles (specifically for this reason). I often get people to do things such as hold my coffee or purse while, I push myself. Someone once asked if I needed help while getting out of my car. I said yes and asked them to throw out my empty coffee cup. This interest in subversion and performance lends itself to a love of art and larger than life persona. I am fascinated by the work of Frida Kahlo. I appreciate contemporary art and performance. A recent fascination of mine was Body Painting. The idea of living canvas, inspired thoughts of Marchesa Casati. I applied to be a Body Painting Model for New York Body Painting Day. The application required a short paragraph about why you wanted to be a model.

I wrote,

I have become interested in body art and body painting as a way of reclaiming and redefining beauty. I am a woman with a disability. I have had the opportunity to do some modeling for a painting class. It is through this experience, that I have been able to understand my disabled body as both worthy and beautiful. I see participating in the body painting parade as a way to explore and shift the taken for granted understanding of the disabled body. I want all who see me in the parade to stop and think about how, the juxtaposition of art or a disabled body disrupts the taken for granted notions of disability as sickness or weakness.

I was ACCEPTED!!!

On July 14 2018, I got my chance to be living art as it were. I was a model for New York Body Painting day, held in Greenwich Village. The event was hosted by Human Connection Arts. The artist who painted me was Lisa Fried a painter and photographer from New Jersey. The event for me was about being living art. As mentioned above, I was really interested in disrupting the tensions between staring and disability. I was also curious about the tension between disability and beauty. The reactions from people were incredibly diverse.

Elisabeth and Sam, photo by Lisa Fried

The day started with being painted in Washington Square. This process was surprisingly interactive, because there was a crowd of onlookers for most of the day. It felt very avant-garde. I assume this must have been what the art models of the impressionist period felt like. This was my favourite part of the day. The artist painting me was very friendly and interested in hearing what I liked. She took inspiration from my mermaid tattoo. I explained that if mermaids were on land they would need wheelchairs. Additionally, the crowd for the most part seemed really engaged in watching the artistic process. Most people who were watching seemed embarrassed when I waved or smiled at them. For a lot of the process, I was naked, so I am curious if my acknowledgment that they were, there made salient that I could see them and they could see me. Lots of people both hired by human connects arts and random people took pictures. Interestingly I don’t think I am very good at having my picture taken. I tend to look directly at the camera if I want my picture taken and down or away if I am not consenting to the photo. This lead to a lot of very forced looking or posed photos. I wanted my image captured by all the body painting day photographers. However, I was less comfortable with the people at the park taking photos. It was a very Derridean experience. I wanted people to read and appreciate my image (story) one way, but really had no control over what on lookers or by standers thought.

Following the painting there was a photo shoot in the park which was largely inaccessible for someone who could not walk. All the models were asked to climb into a large fountain. This was frustrating because, I wasn’t included in the photos and by extension either was Lisa’s art. It was an interesting experience that in an environment that included so many people, and bodies a disabled body was unimagined. I brought my good friend Elisabeth Harrison with me who facilitated much of my access for the trip. I am very please to have such a good friend and ally.

After the photo shoot there was a parade and a bus ride through Greenwich Village. This was noteworthy, because it was a time, when I got to interact with both the public and the other painted models. Continuing with the theme of a Derridean experience, I elicited shock and awe from on lookers (the reaction I wanted). I had lots of people tell me how awesome I looked. People called out they wanted be painted too. However, I was also surprised how many people read me as needing help, or out of place. Lots of people asked if I needed help. Another, painted model explained he knew someone who used a wheelchair (they weren’t there; he just wanted me to know, he knew someone). There was however, another model there who used a wheelchair, she seemed very nice. An on looker called out “hey there’s a wheelchair”. Lisa the artist who painted me asked if I felt people were hesitant to look at me; when ironically, I might get looked at when not painted. I thought this was a good question and interesting observation. I am not sure if the reaction would have been different or more pronounced if I was walking vs. rolling. I appreciated the opportunity to experiment. I feel that for many on lookers I did disrupt the social position of disability, beauty and art. As with most art it goes out into the world. The arts has a story an interpretation. It lives within its time and context. I was living art. I had my goals and intentions for the day. I have my perceptions and readings of peoples reactions. I will never really know who was inspired; who was horrified and who was moved. Everyday I put my ideas and thoughts out into the world and everyday I have no control over what comes back. On a sunny Saturday on the Lower East side of New York, I put not only my thoughts and ideas out into the world but my body; and had no control over what came back. I will never forget the time I was living art. I am grateful to all involved including Lisa Fried and Human Connect Arts.


Samantha Walsh is a Doctoral Candidate in Sociology. She also works in the Not-For-Profit Sector.

accessibility · aging · disability · injury · motivation

An apology: A thing Sam thinks she needs to stop saying…

My life has changed a lot since we started the blog and the fitness challenge. There are things I say when we’re promoting the book that now strike me as wrong or at least not as simple as that, or maybe even naive.

Things feel a lot more complicated since osteoarthritis and advanced cartilage degradation made me a candidate for knee replacement.

It’s hard to get a more nuanced message across when you’ve just got four minutes on television so I’ve been sticking with the simple story but the truth is I know it’s not so simple. I’m not staking out a position here or defending a claim other than than claim that things are messier than I thought. I do know the blog can handle more complexities than the media buzz around the book can take. So you blog readers get the messier story.

Maybe after the book promotion I have to stop saying “if you don’t love it, don’t do it.” There are a lot of things in life that I do but I don’t love. These days a lot of exercise feels to me to fall into that category. Knee physio can be tedious and sometimes painful. And I do it most days. There’s no way to love it. You watch Netflix to distract. You give yourself rewards for finishing. I need to do it but there’s little joy in it.

Instead, I take pride in my grit and determination, in my resolve.

See When exercise isn’t fun.

Why am I doing it? Not love of the thing itself that’s for sure. Partly to be sure it’s instrumentally justified in terms of continuing to do things I love. Canoe camping, hiking, biking. I want to keep these things in my life.

But it’s also instrumentally justified in terms of basic movements, like walking to campus, between meetings, getting in and out of chairs.

To suggest that we approach all exercise from this “loving it” perspective comes from an incredible place of privilege. I had that privilege. I don’t anymore and I’m sorry if I sounded insufferable, naive, and smug.

I saw it again today, by the way, in an online body positive fitness community of which I’m part. Someone offered the advice to another community member to do whatever brings joy to your heart. And the thing is I too reject the imperative that we all have to do joyless exercise to tame or unruly, overweight bodies to keep them in line. I also know though that life is complicated.

Just as Tracy rejects body positivity as just one more demand, I’m coming to feel that way about “if you don’t love it, don’t do it.” No one loves knee physio. It’s okay not to like it and to do it anyway.

It’s okay to be angry and sad and roll your eyes at people who say they just don’t feel like running this morning. You don’t get to yell at them that at least they can run and tell them to just go do it because you can never run again. Just say it in your head. That’s what I do.

It’s okay to think, “I’m tough and I’ve got this” instead of I’m doing this because I love it . Because that’s what’s true: I’m tough and I’ve got this.

Maybe that’s true for you too. I’m sorry for saying you have to love exercise. You don’t. Right now, a lot of the time, I don’t. And that’s okay too.

accessibility · disability · fitness · illness · injury

consider pain: why the social model of disability fails (reblogged)

We don’t reblog a lot around here but sometimes something just strikes me as so right and so important I want to share it. As I’ve been thinking about injury, disability, living with pain, and trying to come to terms with my left knee, I’ve been thinking about the social model of disability. Here’s Andrea Zanin on what the social model of disability leaves out.

I’m hoping to get Andrea to guest blog here about her return to yoga and biking and other things after years ago coping with pain and very serious health issues for many, many years.

But we can start with this. Thanks Andrea.

Sex Geek

pain punctuationToday I am spurred to rant about the social model of disability and why it’s inadequate.

The social model says, essentially, that disability, rather than being a characteristic of an individual, is created by society. On its surface, this is super useful. For instance: if a building has stairs, and a person cannot go up them because they use a wheelchair, then the disability is caused by the lack of a ramp, and by the lack of universally accessible design more broadly. Problems are also caused by ableist attitudes, both interpersonally and within larger power structures.

So far, I totally agree. When the built environment is designed on the assumption of a normative set of physical or mental abilities, then all who fall outside that set have trouble navigating it. Which includes almost all of us, eventually, as we age. It’s good for pretty much everyone if we shift the…

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accessibility · disability · inclusiveness · injury · traveling · walking

Bremen, so many steps, happy tears, and academic travel

It’s summer. I’m in Europe. It’s part of the rhythm and flow of academic life. What’s new? This visit I’m here in my Dean’s role rather than as researcher/writer/philosopher. We have an exchange program with the University of Bremen, involving faculty, grad students, and undergraduates. I’m here with the former Dean to meet the people and learn all about Bremen and the Bremen Guelph connection.

It’s also the 10th anniversary of their Institute for Quebec Canadian Studies.

Just as academic life has a pattern and rhythm so too does the blog. It’s time for the annual post about how much more I’m walking in Europe. Here’s my day on Tuesday.

15,000 steps is a lot of steps given that it included a full working day.

On the one hand, I love living even temporarily in a less car reliant culture. I love being part of a community in which exercise is part of everyday life. But I also worry about access and inclusion and where this leaves people who aren’t so mobile.

I raised the worry in this blog post about walking lots while at a conference in Berne Switzerland four years ago. I blogged about it again from Sweden two years ago (see here) also Scotland and Innsbruck, Austria also two years ago.

It’s a thing I note and wonder about and enjoy all the while worrying about disability. That said, European friends tell my worries about disability are unfounded. What’s your experience? Do you use a wheelchair? Have you traveled around European cities? How did you find it, recognizing that Europe isn’t one place?

The worry, well founded or not, got personal this year traveling to Germany with my injured knee. I noted that the agenda for my campus visit to the University of Bremen included a two hour walking tour of campus. I was frightened I’d have to decline. It’s a big change in self perception and identity.

And the big day of walking was fine. Thank you knee brace. I got all teary wth relief.

(The emotional moment was likely also due to the movers who’d been signed up to do our move phoning me to say they couldn’t do it after all. It’s the busiest weekend of the year for movers, they say, and my agreement made back in April didn’t count for anything. Sigh. Luckily the company who came in second for the bid was willing to take it on.)

But I have wondered how I would have coped had my knee not been in good shape. I’m going to have to learn to advocate for my mobility needs. Lots to learn. I also had an experience in the airport with airport security as my knee brace sets off alarms. I told them it would hurt to take it off and send it through security and they didn’t insist.

The one thing that did hurt was my feet. I haven’t been walking so much in sandals and the weather was warm.I ended up with blisters. The next day I swapped for running shoes and ended up looking very much like a North American tourist. The German women faculty members would have appreciated my Fluevogs. They wear great shoes but I’m not sure how they manage to combine the funky footwear with walking so much.

What do you wear when walking lots, when you’re in urban environments (not hiking) and want to look both stylish and comfortable?

aging · disability · health · injury · monthly check in

Sam’s monthly check-in: What’s up, what’s down, the May version

May! Finally warm weather. The best thing about May is riding my bike. It was 50 km the first week and 60 km the next . Weekdays I’ve been exploring my new home, Guelph, after work and running errands on bike. That’s what’s up. It feels great.

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Not so much “up” is my left knee. It doesn’t feel great.

I met with the knee surgeon again. Total knee replacement still looks far away. At least I hope so. See 9 Things No One Ever tells You About Getting a Knee Replacement for details. We’re still seeing how things go with the goo injections and the brace.

I’m wearing the brace for walking. I’m doing physio still. And I’m riding my bike. That’s all good.

The surgeon and his team are busy telling me that all the activity I’ve done isn’t responsible for my knee osteoarthritis. They do also tell me never to even say the word “running” again. Fine. See Sam struggles not to run, ever!

But they do say I’d be in less pain if I lost weight. More seriously they say that losing weight would help me put off total knee replacement. That’s big.

Now they used to also say that knee patients should lose weight first, before the surgery. See Researchers Find Weight Loss Not Necessary for Joint Surgery

But if you think you must lose those extra pounds before a knee or hip replacement, think again, as researchers with UMass Medical School found long-term relief from joint replacement surgery was almost the same in obese and non-obese patients.

“The conventional wisdom is that the lower your body weight, the lower your body mass index, the better you will do in joint replacements, and there has been an increasing push to say that if you are obese you should not have joint replacement – either knee or hip replacement,” Dr. David C. Ayers, chairman of orthopedics and chairman and professor of orthopedics and physical rehabilitation at UMass Medical School, said Thursday.
Dr. Ayers is the co-author of a study reporting the findings published last month in the Journal of Bone and Joint Surgery.

“What this study shows is that people who are overweight and are obese get the same type of pain relief and improved function that non-obese patients do,” he said.

Surprise! Fat people are people. Fat bodies are bodies. And knee pain hurts a lot no matter what your size.

The old wisdom sounds just like, “You’re fat so must pay the price! Suffer! No knee replacement for you!” Doctors can be jerks.

But in my case we’re not talking about weight loss before surgery. The issue is weight loss to put off the necessity of joint replacement. Total knee replacement is worth avoiding. Right now knee replacements last 20 years max. So if all goes well, I might need a second one. It’s big painful surgery with a very lengthy recovery time. I don’t want to do it twice.

See here. Point 1: “For many, weight loss is a basic but crucial way to help avoid knee surgery. Shedding just 15 pounds can cut knee pain in half. And should you need arthritis knee surgery later, you’ll decrease your risk of complications and reduce strain on your knees, which will make your rehabilitation go more smoothly.”

So, what to do?

I’m reading a lot about knee pain and weight. No surprise there!

But I’m also researching weight loss for medical reasons. Maybe like me you thought that weight loss is hard but once you’re told you need to lose weight for medical reasons, you just do it.

I’m here to tell you the sad news that it’s not so simple. Your body doesn’t care what your motivation is. It’s not like it ignores the diets for beauty’s sake and pays attention to the diets for urgent health reasons.

I think when I was younger I even thought it would be good to have a medical reason to lose weight because then you’d be serious about it and just do it. I could be a feminist and be skinny because I was dieting for health reasons. Bah.

Now I have very good reasons, I’m being serious about it, and I’m still struggling.

Tracy and I were chatting today about whether it ever makes sense to talk about weight and weight loss on the blog. It’s not something we talk about much. It’s a blog about fitness not weight and shape and we’re very keen to distinguish these things. In this case though weight loss isn’t a goal that I want to result from my fitness efforts. Weight loss may be necessary to keep me active.

We’re all about staying fit and strong in midlife and beyond. That’s the overarching message of our book. But given my knee and the state it’s in, staying active may mean losing weight. I’m trying. I won’t post much about my successes and failures. I know that’s too much for those of you with histories of disordered eating. Even though I’m one of the larger bloggers here, that’s not me. I like food and my relationship with it. But I also feel the need to be honest on the blog about what’s up with me fitness wise.

Have you had or contemplated having knee replacement? Have you struggled with medical reasons to lose weight? Tell me your story

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Also, hello May, I’m tentatively making plans. There are plans afoot for bike/boat holidays, for canoe/camping trips, for long bike rides. I love the summer and I’m going to enjoy it.