by Christine Junge
“Why aren’t you doing another triathlon this year?” an acquaintance asked.
I gulped. “I’m having some, uh, health issues,” I said. I was keeping things vague out of necessity—I had no damn idea what was happening, only that I had a constant (and I mean 100% of the time) headache that reached an unbearable level by the time I left work for the day. I went to sleep pretty much as soon as I got home—not only because being in pain is exhausting, but because sleep was the only time I didn’t feel awful. My life goals had gone from: publish a book, rock my career in publishing, and finish a tri even though I can barely swim, to: get through the day.
In the year after the pain started, I had test after test. They all came back negative, which was a good thing on the one hand (who wants to have a brain tumor or Lyme disease), and utterly frustrating on the other. After each of my appointments at Boston’s various prestige medical clinics, I wanted to scream, Why can’t you just tell me what was wrong with me?
Eventually, through a process of elimination, they diagnosed me with occipital neuralgia (nerve pain in the upper neck) and idiopathic chronic migraines (idiopathic just means that they have no flipping idea why it’s happening.) I tried treatment after treatment (Botox injections, handfuls of pills, various psychologic therapies) but the headaches wouldn’t budge. I was in bed for the vast majority of most days. The body I toned through hours of training atrophied.
Eventually I went to the Cleveland Clinic for a three-week “headache camp,” as a friend called it. There they tweaked my medications but more importantly, they taught me more than I could’ve imagined about headaches and how to maneuver your lifestyle to live with—and hopefully eventually prevent—them.
One of their prescriptions was to get back to exercising. I had all but stopped as the pain consumed me. There were a few scientifically backed reasons for this recommendation: exercise has been shown to reduce the severity of pain in people with many chronic pain conditions; it also greatly helps with the anxiety and depression that often hits people with chronic illnesses of all stripes (and that certainly hit me).
For me, it also allowed me to get back in touch with that former triathaloning self. I started with walking—an exercise I still love. I added yoga and light weight training. Slowly but surely, I started to feel better physically and emotionally. Now, I walk for an hour a few times a week, do pilates at least once a week, and I’m currently attempting to reintroduce weight training after that fell out of my routine. On days I exercise, I feel less achey—and also like my body is my friend again, not something that revolted against me. I feel, too, that I am strong—I hadn’t realized how upsetting it was to my sense of self to think of myself as weak. Now, I am not just someone with a disabling condition, I am someone who can keep up with her son on the playground, who can squat down and lift his four-year-old body, who doesn’t have to fear the idea of trudging around a theme park all day.
I have greater exercise ambitions, too: I plan to conquer a ten-mile hike in the next few months, and an even longer one by the end of the year, with the eventual goal of walking 100 miles or so on Europe’s El Camino Santiago. I have no thoughts of trying for another triathlon, but thanks in part to regular, light exercise, I’m doing much more than just getting through the day now.
If you have a story about exercising during or after illness, we’d love to hear it!
Christine Junge is a writer living in San Jose, CA. She’s currently working on a novel, and blogs about parenting with a chronic illness/disability at ThanksForNothingBody.substack.com
Thank you for sharing your story. I really like what you said about getting in touch with your former self. We can do this without becoming our former selves (an impossibility) but moving to find a new version of us that works in the present time.